A young boy, Henley Mountford-Farmer, faces a challenging daily routine as he battles a rare medical condition called gastroschisis. This condition, detected in August 2019, left Henley with less than half of his bowel functioning due to a portion being removed during emergency surgery shortly after his birth. Despite his struggles, Henley strives to lead a normal life, supported by his devoted family.
Henley relies on a total parenteral nutrition (TPN) drip to receive vital nutrients that his body cannot absorb from regular food. This feeding method, delivered through a central line into his heart, requires him to carry a portable bag wherever he goes. Henley’s mother, Kali, describes him as resilient and determined, despite the constant challenges he faces.
Living with multiple health issues, including short-gut syndrome and various allergies, Henley experiences frequent pain and discomfort. Despite his high pain tolerance, he often struggles with debilitating symptoms, affecting his daily activities and school attendance. Recent medical complications have added to his pain, causing internal bleeding and recurrent hospital visits, disrupting his family’s cherished camping trips.
Henley’s strong spirit and eagerness to lead a normal life shine through in his interactions with animals and his desire for a dream garden. His community has rallied around him, organizing a GoFundMe campaign to help create a safe and enjoyable outdoor space for him. This campaign aims to provide Henley with a soft area to prevent falls, a seating spot for bonding with his mother, and a special place next to a chicken coop where he can watch his feathered friends.
Despite the challenges he faces, Henley’s positive attitude and the unwavering support of his family and community continue to inspire those around him. For those interested in contributing to Henley’s campaign for his dream garden, donations can be made on the GoFundMe platform.