Simone Abrahamsohn, a resident of Toronto, recently experienced a significant life change during this summer. Following the loss of her mother, she took on the role of primary caregiver for her older brother. Their cohabitation involves unique challenges as both siblings are neurodivergent individuals in their middle age.
Simone’s brother, Stuart, is an autistic individual who also survived a left-brain stem stroke. His care needs include handfeeding due to a hand tremor post-stroke, assistance with daily activities like transfers, bathing, grooming, and exercises, and management of emotional lability triggered by loud noises.
Reflecting on their childhood, Simone recalls feeling embarrassed by Stuart’s autistic behaviors, which were misunderstood by others. She explains how she has learned to manage her own ADHD tendencies, such as masking her introverted nature and emotions, to create a harmonious living environment with Stuart.
Despite the challenges, Simone acknowledges the similarities between herself and Stuart. She emphasizes the importance of understanding and accepting each other’s differences. By adjusting her behaviors and communication style, Simone aims to provide Stuart with autonomy and actively involve him in decision-making processes, fostering a supportive living arrangement.
While sacrificing some personal interests to prioritize caring for Stuart, Simone finds fulfillment in strengthening their sibling bond. Through a combination of restructuring schedules, seeking external caregiver support, and adapting attitudes, Simone is dedicated to enhancing their cohabitation experience as non-neurotypical siblings. She sees this phase of their lives as an opportunity for growth and mutual understanding, cherishing the chance to be a better sibling to Stuart in their shared journey.
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